11 April 2024

SWSPHN, Gandangara Local Aboriginal Land Council (LALC) and Yarpa Hub came together with Elders and community members to recognise and raise awareness of end-of-life planning during Advance Care Planning Week.

Patsy Bingham, an End of Life Doula, was at the Advance Care Yarning Session to talk about the importance of having an advance care plan and letting your mob know your healthcare and end-of-life wishes before it’s too late.

The Advance Care Yarning Session helped to relieve the stigma around talking about end-of-life planning. It also allowed Elders and community members to come together, ask questions, and have a yarn about advance care planning in a safe and culturally informative space.

Advance care planning helps ensure your mob knows what care decisions to make when you are no longer able to communicate these yourself.

For helpful resources on end-of-life planning visit End-of-life planning for Aboriginal and Torres Strait Islanders

 

Caption: SWSPHN’s Integration & Priority Populations Coordinator Ivan Broome with Gandangara LALC staff at the Advance Care Yarning Session.

 

End-of-life planning for Aboriginal and Torres Strait Islanders

When you let your mob know of your healthcare and end-of-life wishes in advance, you relieve them of the burden of making these difficult decisions without knowing exactly what you would want. For instance, what healthcare you would agree to receive? Do you want to be taken back to country when you pass?

The resources here help relieve the stigma around talking about end-of-life, from advance care planning to palliative care. These resources are for people who live in Gandangara and Tharawal country.

 

Resources on this page include:

  • Yarning Our Wishes

Advance Care Planning guide

  • A Journey into Sorry Business

Palliative care support information for Aboriginal and Torres Strait Islander people living in South Western Sydney

  • Advance care yarning

This booklet provides scenarios where having an advance care plan in place is beneficial, and how to setup an advance care plan.

  • Discussion Starter

Use this booklet, developed by Palliative Care Australia and Congress of Aboriginal and Torres Strait Islander Nurses and Midwives, to document what is important to you.

08 March 2024

People living with dementia now have access to Easy Read information about their condition.

SWSPHN has developed an Easy Read factsheet about dementia, which is available on our Health Resource Directory (HRD) website.

The factsheet, developed in consultation with a person living with dementia, has information about:

  • What dementia is
  • How dementia is detected
  • How dementia may affect you
  • How to live well with dementia
  • Questions you can ask your doctor
  • Where to find extra support

The aim of Easy Read is to give more people access to information. Easy Read is a way to present information for people who are not familiar with English, or who have low literacy or learning disability. Easy Read’s unique layout and style presents information so it’s easy to understand.

The Easy Read dementia factsheet adds to the resources about dementia already available on HRD. The factsheets have been formulated under strict clinical guidelines, include information about local support and health services, and are available in English, Vietnamese, Simplified Chinese and Arabic.

Please download the Easy Read factsheet for patients with a dementia diagnosis where appropriate.

08 March 2024

People living with dementia now have access to Easy Read information about their condition.

SWSPHN has developed an Easy Read factsheet about dementia which is available on our Health Resource Directory (HRD) website.

The factsheet, developed in consultation with a person living with dementia, has information about:

  • What dementia is
  • How dementia is detected
  • How dementia may affect you
  • How to live well with dementia
  • Questions you can ask your doctor
  • Where to find extra support

The aim of Easy Read is to give more people access to information. Easy Read is a way to present information for people who are not familiar with English, or who have low literacy or learning disability. Easy Read’s unique layout and style presents information so it’s easy to understand.

The Easy Read dementia factsheet adds to the resources about dementia already available on HRD. The factsheets have been formulated under strict clinical guidelines, include information about local support and health services, and are available in English, Vietnamese, Simplified Chinese and Arabic.

Download the Easy Read factsheet

24 July 2023

Resources available in six languages to encourage and prompt older people and their loved ones to think and talk about planning for later life.

 

The Australian Human Rights Commission is undertaking a campaign to raise awareness about the importance of planning ahead for later life.

Future planning empowers older people to have choice and control over their senior years and provides peace of mind for them and their loved ones.

It involves thinking and talking to those you trust about your future healthcare, financial and lifestyle choices.

A suite of resources is available in English, Mandarin, Italian, Vietnamese, Greek and Arabic to encourage and prompt older people and their loved ones to think and talk about planning for later life.

Visit this Australian Human Rights Commission webpage to find:

  • Social media assets
  • Community videos
  • Conversation guides
  • Frequently asked questions
  • Radio ads
19 July 2023

SWSPHN has joined forces with Wollondilly Shire Council to present an end-of-life planning workshop for the community. 

Titled “You Only Die Once!”, the workshop will be held from 10am to 1pm on Tuesday, 22 August at Wollondilly Shire Hall, 44 to 60 Menangle Street, Picton. 

The event has been organised around Dying to Know Day, an annual campaign by The Groundswell Project designed to normalise conversations about death and dying. It aims to empower all adults to be self-advocates through Advance Care planning when it comes to their future.    

“You Only Die Once!” will guide participants through the steps of documenting their future healthcare wishes and desires to ensure their preferences are understood and respected. 

Our SWSPHN team will be on hand along with Patsy, from End-of-Life Angels, for a chat and to provide further information. 

Tea/coffee and a light lunch will be provided at the workshop. 

Bookings are essential. Visit Wollondilly Council workshops or call 4677 9693. 

26 June 2023

GP practices using Best Practice software can now upload advance care planning documents to My Health Record for their patients. 

Patients and their carers have been able to upload advance care directives to their own records since 2016, but the new functionality allows their GPs to do the uploading.

Both internally created documents and external PDFs can be uploaded.

This increased functionality will enable more people to have their documented preferences accessible by clinical teams, and their preferences respected, for example, people in an emergency situation or members of a multidisciplinary team needing access to a patient’s end-of-life planning.

The new capability will be available in Best Practice’s next release, Bp Premier Orchid SP1.

PDFs created within Best Practice can be directly uploaded from Bp’s main menu, while externally created PDFs can be uploaded from Bp’s correspondence menu.

Word documents or Rich Text Format (RTF) documents are not able to be uploaded and will have to be converted into a PDF before exporting.

16 March 2023

Navigating the world after a dementia diagnosis is often a tricky and daunting task for families, carers and people living with dementia.

SWSPHN has compiled a Dementia and Palliative Care Directory using local, state and national services to guide families, carers and people living with dementia from diagnoses to end-of-life care.

The directory is available as a webpage on our website and as a downloadable, interactive pdf.

Among the wealth of services and resources available through the directory is information about:

dementia booklet

  • Advance care planning and directives
  • National care services
  • Support groups
  • Doulas
  • Dementia specific activities
  • Transport services
  • Food services
  • Bereavement counselling services

This directory was developed as part of SWSPHN’s Peace of Mind project (POMp), funded under the Commonwealth Greater Choice for at Home Palliative Care measure.

POMp aims to improve the end-of-life journey of people living with dementia, their carers, families and health professionals, through the implementation of education, information and resources for community.

A hard copy of the directory will be available during Advance Care Planning Week, 20 to 26 March, in the Southern Highlands and Campbelltown.

The Dementia and Palliative Care Directory is available:

  • Monday to Friday at Wingecarribee Shire Council, Civic Centre Customer Service Desk, 68 Elizabeth Street Moss Vale. The Customer Service Desk display will include the new Palliative Care and Dementia Directory, the A journey into Sorry Business booklet and other information from SWSPHN about advance care planning.
  • Wednesday, 22 March at an information stall at Oran Park Library, 72 Central Ave, Oran Park, between 10am and 12pm.
  • Thursday, 23 March at an information stall at HJ Daley Library, 1 Hurley Street, Campbelltown, between 9.30am and 11.30am.
24 February 2023

Join SWSPHN’s Priority Populations Program team at NSW Seniors Festival events if you’d like to learn more about Advance Care Planning.

We’ll be hosting a stall at Fairfield City Council’s 2023 Senior Expo celebrating NSW Seniors Festival.

10am to 2pm
Tuesday, 28 February
Fairfield Showground,
443 Smithfield Road, 
Prairiewood

We’ll also be holding a talk and hosting a stall at the Minds, Healthy Bodies workshop in Picton.

10am to 12pm
Thursday, 9 March
Council Chambers,
Wollondilly Shire Hall,
62-64 Menangle Street,
Picton

Reserve a spot

Advance care planning is the process of planning for future healthcare needs.

It relates to healthcare an individual would or would not like to receive if they were to become seriously ill or injured and are unable to communicate their preferences or make decisions.

This often relates to the care people receive at the end of their life.

If you’d like to know more, pop by our stall for a chat.

30 January 2023

NSW Health is inviting Dying with Dignity supporters and other interested individuals to a webinar on Wednesday, 1 February at 5.30pm to talk about how they are preparing for voluntary assisted dying to become available in NSW later this year.

Join NSW Chief Health Officer, Dr Kerry Chant, and the Voluntary Assisted Dying Implementation Team to find out what resources will be available to support patients and clinicians.

It will also be an opportunity to ask questions of the implementation team.

Register for the webinar
16 January 2023

You’re invited to come along and hear from SWSPHN’s Priority Populations Program team about the importance of Advance Care Planning (ACP) at venues across the region during NSW Seniors Festival 2023.

We’ll hold talks, host stalls and be available to answer questions at community activities in Campbelltown, Wollondilly and Wingecarribee in February and March.

 

What is Advance Care Planning?

Advance Care Planning is the process of an individual planning the healthcare they would or would not like to receive if they are injured or become seriously ill and are unable to communicate their preferences.

It helps the individuals’ loved ones and doctors know what care they would prefer to receive.


Where will you find us?

Friday, 2 February – Moss Vale

Healthy Minds, Healthy Bodies at the Civic Centre Theatrette, 68 Elizabeth Street, Moss Vale, 10am to 12pm. Our team will be holding a talk about ACP and handing out information.

Reserve a spot

 

Tuesday, 7 February – Campbelltown

Let’s Talk Legal program: Wills for Seniors at HJ Daley Library, 1 Hurley Street, Campbelltown, 10.30am to 12.30pm. Our team will be hosting a stall.

Reserve a spot

 

Wednesday, 8 February – Moss Vale

Planning for the rest of your life at the Civic Centre Theatrette, 68 Elizabeth Street, Moss Vale, 9.30am to 4pm. Our team will be hosting a stall.

Reserve a spot

 

Friday, 10 February – Narellan

IC Care musical and services expo at Narellan Community Health Centre, 14 Queen Street, Narellan, 10.30am to 1.30pm. Our team will be hosting a stall.

Reserve a spot

 

Thursday, 9 March – Picton

Healthy Bodies, Healthy Minds at Wollondilly Shire Hall, 62-64 Menangle Street, Picton, 10am to 12pm. Our team will be holding a talk about ACP and hosting a stall.

Reserve a spot