Palliative care

Carers share experiences of palliative care at directory launch

23 May 2023

Celebrating National Palliative Care Week (21 to 27 May) this week, Kate Noble and Lucy Hobbs from the SWSPHN Integration and Priority Populations team hosted a well-attended event for community members on Monday, 22 May.

The event highlighted the importance of putting people at the heart of quality care and launched the new Dementia and Palliative Care Directory.

The directory was developed as part of SWSPHN’s Peace of Mind project, funded under the Commonwealth Greater Choice at Home Palliative Care measure. It includes local, state and national services which help guide families, carers and people living with dementia from diagnosis to end-of-life care.

Attendees heard from two community members who told of their own recent experiences as carers of a loved one being diagnosed with dementia (pictured).

Ingrid spoke of the diagnoses of her mother, and the support she received from her GP in accessing care, and the difficulties she faced finding local supports. Angus shared the story of his wife, her dementia diagnosis, and how he was supported by Dementia Australia.

Both speakers discussed how their knowledge of palliative care has grown over time and highlighted the importance of understanding the disease in all stages. This has allowed them to provide a better quality of life for their loved ones living with dementia.

It is available as a webpage on our website and as a downloadable, interactive pdf.

Dementia and Palliative Care Directory